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Pitt Hopkins Million Dollar Bike Ride for Hope
Bella Girly Tri-Blend Wideneck Sweatshirt
- Sizes S - XXL
- View Sizing Guide
About this campaign
WHY THIS RIDE IS A BIG DEAL FOR US
The Penn Medicine Center for Orphan
Disease Research and Therapy (CODRT) is sponsoring this race to raise
money for research in rare diseases such as Pitt Hopkins, and they will
MATCH EVERY DOLLAR DONATED!! (up to $50,000) Please consider donating to
our cause and being a part of transformative research. 100% of your
donation will go towards research!
Rare diseases impact more people than Aids and Cancer combined.
Give some amazing children hope.
Pitt Hopkins is run completely by volunteers.
www.pitthopkins.org
Click here for the ladies wideneck sweatshirt sizing guide
Click here for the unisex zip-up hoodie sizing guide
LIKE THIS DESIGN? CHECK OUT OUR OTHERS!
www.booster.com/pitthopkinspedalers
www.booster.com/pthsrideforhope
What is Pitt Hopkins?
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by
a mutation of the TCF4 gene on the 18th chromosome. It is characterized
by profound developmental delays, problems with motor coordination
(ataxia) and balance, breathing abnormalities, seizures and severe
intellectual disability. Most individuals with Pitt Hopkins do not
develop functional speech. Pitt Hopkins affects all races and both
genders equally.
Since the gene that causes Pitt Hopkins was
only found in 2007, currently there are less than 350 children in the
world diagnosed with this syndrome, however we believe there are many
more.
OUR RESEARCH
Every cent that
Pitt Hopkins Research Foundation goes to the research- and this is
important: the research is truly cutting edge, and if you know anyone
with ALS, Alzheimer's or Autism, then this is of interest because single
gene disorders like Pitt Hopkins (where the cause has been identified)
is one of science's best hopes for finding treatment for other
genetically caused syndromes. This research affects us all.
Comments
Share Why You Support "Pitt Hopkins Million Dollar Bike Ride for Hope"
Supporters
Thank you for spreading swareness. This group led me to Sidney's diagnosis!!
thanks for helping jack and others just like him..special and beautiful
For one of my fav's, Calvin Lapidus and his awesome parents, Audrey and Eric. You all rock!
Our grand daughter Salena has Pitt- Hopkins Retts & Trisomy 18 P & Q
Supporting this campaign for Ian Fletcher!
Rare but not forgotten! Thank you, Jo!!!