We Did It! Our Custom Ink Fundraising Campaign Has Closed
Need shirts for your next group event? Create your own custom t shirts.
Interested In Fundraising With Custom T-Shirts? Start Your Own Custom Ink Fundraising Campaign
Pitt Hopkins Million Dollar Bike Ride for Hope
Sport-Tek Baseball Raglan
- Sizes XS - XXXXXXL
- View Sizing Guide
About this campaign
WHY THIS RIDE IS A BIG DEAL FOR US
The Penn Medicine Center for Orphan
Disease Research and Therapy (CODRT) is sponsoring this race to raise
money for research in rare diseases such as Pitt Hopkins, and they will
MATCH EVERY DOLLAR DONATED!! (up to $50,000) Please consider donating to
our cause and being a part of transformative research. 100% of your
donation will go towards research!
Rare diseases impact more people than Aids and Cancer combined.
Give some amazing children hope.
Pitt Hopkins is run completely by volunteers.
www.pitthopkins.org
LIKE THIS DESIGN? CHECK OUT OUR OTHERS!www.booster.com/rideforhope
www.booster.com/pitthopkinspedalers
What is Pitt Hopkins?
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by
a mutation of the TCF4 gene on the 18th chromosome. It is characterized
by profound developmental delays, problems with motor coordination
(ataxia) and balance, breathing abnormalities, seizures and severe
intellectual disability. Most individuals with Pitt Hopkins do not
develop functional speech. Pitt Hopkins affects all races and both
genders equally.
Since the gene that causes Pitt Hopkins was
only found in 2007, currently there are less than 350 children in the
world diagnosed with this syndrome, however we believe there are many
more.
OUR RESEARCH
Every cent that
Pitt Hopkins Research Foundation goes to the research- and this is
important: the research is truly cutting edge, and if you know anyone
with ALS, Alzheimer's or Autism, then this is of interest because single
gene disorders like Pitt Hopkins (where the cause has been identified)
is one of science's best hopes for finding treatment for other
genetically caused syndromes. This research affects us all.
Comments
Share Why You Support "Pitt Hopkins Million Dollar Bike Ride for Hope"
Supporters
A better tomorrow for our Angel Anthony!
Because Calvin, Sadie, Eric and Audrey are the most awesome people ever!
All for Rylie!!
I support this campaign for Ian Fletcher.
I want to wear this while practising the route and hopefully get some more people to donate to the Bike Ride.